It was just about two years ago, when the name “Alana Rose” started making headlines.
From that moment, every person who heard her story, started rooting for her to beat the odds. Alana’s story began Sept. 14, 2014. She was a healthy, happy baby, until her eighth month. Mom and dad — Kyle Prettyman and Alexa Shoultes — noticed Alana would get fussy, wouldn’t take a bottle, and became unresponsive.
After a slew of medical tests – and forty-six consecutive days at Alfred I. dupont Hospital for Children – doctors determined Alana suffered from a rare mitochondrial disease from a mutation of the bola-three gene. There is no cure for the disease, but Alana made it to her first birthday, which doctors didn’t think she would live to see.
On Dec. 16, 2015, Alana’s brave fight ended. Despite the pain Kyle and Alexa has gone through, they have vowed to make a difference in the lives of families who are going through similar situations.
Alexa joins us in the studio along with Lania Peterson, owner of Painting with a Twist to talk about an upcoming event to benefit the Alana Rose Foundation, “Painting with a Purpose.”
The event is Feb. 23, in Lewes from 6:30 pm – 9:30 pm. Register for the event here.